What Is Patient Registration?
China's DMD patient registration has finally started from 2012-9-1, and this registration has been accepted and recognized by European TERT-NMD. This will play an important role in promoting the clinical and research of DMD in China. This also makes it possible for Chinese patients to participate in international research and promote Chinese patients with DMD to participate in exon skipping as soon as possible.
Registration of DMD muscular dystrophy patients in China
Right!
- China's DMD patient registration has finally started from 2012-9-1, and this registration has been accepted and recognized by European TERT-NMD. This will play an important role in promoting the clinical and research of DMD in China. This also makes it possible for Chinese patients to participate in international research and promote Chinese patients with DMD to participate in exon skipping as soon as possible.
- Registration of DMD muscular dystrophy patients in China
- Introduction:
- The Duchenne-type muscular dystrophy registration research plan was established by the US-China Medical Exchange Foundation (ACMCF) and the DMD Care Association (Preparation), and the Armed Police General Hospital served as the head of the registered research plan. In order to provide patients with information to better understand the disease, establish links between clinicians, other medical personnel, researchers and registered participants, improve clinicians and medical personnel to improve the diagnosis and treatment of diseases, and thus establish a Chinese DMD / BMD registration network Provide a platform for everyone to communicate together, encourage more people to conduct research on DMD, and make clinical research more convenient.
- Contact information:
- If you have any comments or suggestions about registered research, please contact
- Mailing address: Dr. Xin, Department of Neurology, Armed Police General Hospital, 69 Yongding Road, Haidian District, Beijing, 100039