What is an orphaned disease?

Oshable disease is a disease that does not attract much attention to the public, research or financing, usually because it is very rare and poorly promoted. Thousands of such diseases can be found worldwide, from extremely rare genetic disorders such as fatal familial insomnia to tuberculosis, which does not attract attention in industrial countries due to low incidence of reported cases. In several countries, efforts to promote research by an orphaned disease have been developed to heal people who suffer from these conditions. In the first case, any disease that affects less than 200,000 people is generally considered to be an orphan's disease because there is not enough patients to be effective. Diseases that are common in the developing world, but rare or unheard of in the industrial world, are also called orphaned diseases because they cannot attract attention from the main pharmaceutical societies.

Many orphan diseases are of genetic nature, which can make them very demanding for study, let alone heal. Others take the form of extremely rare viruses, unusual bacteria or special allergies, and it may take time to diagnose and write, so they slip through the moon or years until someone starts to connect more incidents of the same condition. Scientists, such as epidemiologists, are often more in contact with developing diseases than others, but cannot attract sufficient attention to extremely rare illnesses to inform the public about the problem.

In terms of pharmaceutical societies, research is a disease -loser disease. Sinking a serious investment of time and energy in the potential treatment of the disease that can only be sold to a limited market is simply not worth a while. Some governments have acknowledged this and provided financial incentives to pharmaceutical companies that have decided to explore the illnesses of orphaned, in the hope of attracting more interest in the development of treatmentunder these conditions.

Causes that focus on a particular orphaned disease also have financing problems because they are not strongly promoted. Some of the charity organizations that realized this have joined under the general umbrella of rare disease research rather than trying to raise funds for one disease. Donors often feel more comfortable to donate a blanket that will distribute financing because it will be suitable than trying to give the amount of causes. These organizations can also privately sponsor calls for identifying, treatment and potentially prevent or treat specific orphaned diseases.